Today is our first full day at home. Last night Lincoln played with his sister Emma and played doctor with their toys. He showed her how to use the stethoscope and other instruments he got in his doctors bag of play instruments. It was a happy evening that made everything feel ok again. Unfortunately things have changed and will change.
Today I return to my job which takes me far away to Sweet Home, Oregon. I want to be closer to Home but I only have to spend a few days there. These next few days could be critical as Lincoln's white blood cell drop even lower and his risk for infection increases. As soon as we notice the slightest little change in his health we need to check for a temperature of 100.4. Then we go to the Salem ER to start IV antibiotics. Pray this never happens because it will be scary.
Until we see any real hit to his health we will be watching closely, washing our hands a lot and sanitizing with a sneeze or a cough because bacteria is abundant and wants to find a way to upset things.
Thursday, July 7, 2011
Wednesday, July 6, 2011
Cramming for Finals
As we prepare to leave the hospital we carry a load of information. We were not prepared for leukemia but we are preparing for Lincoln's journey, as fast as possible. There is a Manuel of instructions we need to follow closely to care for our boy. No more nurses doctors or hospital room to stay on course, it's time to sail this ship.
Lincoln is still doing great as a little boy should but his blood counts are getting to the lowest point. Killing cancer cells means killing the bodied immune system temporeraly. Now come the tough part. The road ahead is long and rough but we are survivors.
Follow @ http://www.caringbridge.org/visit/lincolndanieljones/journal too!
Your also welcome to 'friend' me on Facebook
Lincoln is still doing great as a little boy should but his blood counts are getting to the lowest point. Killing cancer cells means killing the bodied immune system temporeraly. Now come the tough part. The road ahead is long and rough but we are survivors.
Follow @ http://www.caringbridge.org/visit/lincolndanieljones/journal too!
Your also welcome to 'friend' me on Facebook
Tuesday, July 5, 2011
Going the Distance
Tonight feels like the night before graduation from high school. For a very long time, in some cases 4 years and in others, 4 days, we prepare to go out into the great unknown.
The excitement of completing the course and the fear of the unknown, while still knowing next to nothing when it comes to the real world, are stirring inside. We just took a crash course and now were off to finish this race called life.
There are many obstacles that dissolved before us from the time Lincoln was diagnosed until now, but there are a few more that have an opportunity to present serious challenges.
We have heard a lot about the steroid Dexamethasone that has some more serious side effects from constipation to extreme mood swings, and that could be for the next 6 months.
We may be leaving tomorrow but we will be back every Monday and Thursday for clinic.
There are still some unknown genetic issues we could discover that could complicate or even lower some risks.
The biggest thing is a very real change in lifestyle that could be 3-5 years until he is completely cured.
Cancer has been exposed to the medical field and is losing it's power, but it can still be sneaky and it still kills 1000s of children each year.
I refuse to believe medicine and doctors are the only chance of survival from life threatening diseases. God, family and friends who support the victim of cancer with prayer, communication and every day living needs are more significant than could be expected.
Thanks is not enough from our family to yours. With so many blessings We want to give it all back and then pay it forward to someone else in need.
The excitement of completing the course and the fear of the unknown, while still knowing next to nothing when it comes to the real world, are stirring inside. We just took a crash course and now were off to finish this race called life.
There are many obstacles that dissolved before us from the time Lincoln was diagnosed until now, but there are a few more that have an opportunity to present serious challenges.
We have heard a lot about the steroid Dexamethasone that has some more serious side effects from constipation to extreme mood swings, and that could be for the next 6 months.
We may be leaving tomorrow but we will be back every Monday and Thursday for clinic.
There are still some unknown genetic issues we could discover that could complicate or even lower some risks.
The biggest thing is a very real change in lifestyle that could be 3-5 years until he is completely cured.
Cancer has been exposed to the medical field and is losing it's power, but it can still be sneaky and it still kills 1000s of children each year.
I refuse to believe medicine and doctors are the only chance of survival from life threatening diseases. God, family and friends who support the victim of cancer with prayer, communication and every day living needs are more significant than could be expected.
Thanks is not enough from our family to yours. With so many blessings We want to give it all back and then pay it forward to someone else in need.
A new direction
Thank you for visiting my blog to hear more about Lincoln and his new journey. I promise I will have plenty to share and everyone will have a chance to hear.
Here's what's new: his animea is getting better, his white blood cells (both good and bad)are decreasing, he has had very minor side effects to the treatment but that's not all. We very well may be going home tomorrow!! Can you believe it?
Lincoln has had more prayer and good thoughts sent his way than one could ever imagine. The evidence of God's grace and mercy are abundant. It's actually almost to good to be true, under the circumstances. Thank you all, you made a difference. But we all know there is still a journey to complete.
For the next three years our lives will change dramatically to keep this little one healthy. Keep praying, keep hoping, keep believing. More soon...
Here's what's new: his animea is getting better, his white blood cells (both good and bad)are decreasing, he has had very minor side effects to the treatment but that's not all. We very well may be going home tomorrow!! Can you believe it?
Lincoln has had more prayer and good thoughts sent his way than one could ever imagine. The evidence of God's grace and mercy are abundant. It's actually almost to good to be true, under the circumstances. Thank you all, you made a difference. But we all know there is still a journey to complete.
For the next three years our lives will change dramatically to keep this little one healthy. Keep praying, keep hoping, keep believing. More soon...
Sunday, June 12, 2011
THE WORD
In the beginning was the Word, and the Word was with God, and the Word was God. HE was with God in the beginning. John 1:1-2
Who was He?
The WORD became flesh and made his dwelling among us. We have seen his glory, the glory of the one and only SON, who came from the Father, full of grace and truth. John 1:14
HE was the WORD, the Son of God.
That which was from the beginning, which we have heard, which we have seen with our eyes, which we have looked at and our hands have touched—this we proclaim concerning the WORD of LIFE. The life appeared...We proclaim to you what we have seen and heard, so that you also may have fellowship with us. And our fellowship is with the Father and with his Son, Jesus Christ. 1 John 1:1-3
Jesus Christ is the WORD of LIFE
Don't you believe that I am in the Father, and that the Father is in me? The WORDS I say to you I do not speak on my own authority. Rather, it is the Father, living in me, who is doing his work. John 14:10
These are the WORDS of the Father
Jesus answered, "I am the Way and the Truth and the LIFE. No one comes to the Father except through me. John 14:6
The WORD is the Way, the WORD is the Truth, the WORD is Life.
This is the message we have heard from him and declare to you: God is Light; in him there is no darkness at all. If we claim to have fellowship with him and yet walk in the darkness, we lie and do not live out the truth. But if we walk in the Light, as he is in the Light, we have fellowship with one another, and the blood of Jesus, his Son, purifies us from all sin. John 1:5-7
The WORD is Light in the darkness
How can a young person stay on the path of Purity? By living according to Your WORD. Psalm 119:10
The WORD is Pure
I have hidden your WORD in my heart that I might not sin against you. Psalm 119:12
The WORD protects you
If we claim we have not sinned, we make him out to be a liar and his WORD is not in us. 1 John 1:10
Is the WORD in you?
For the WORD of God is alive and active. Sharper than any double-edged sword, it penetrates even to dividing soul and spirit, joints and marrow; it judges the thoughts and attitudes of the heart. Hebrews 4:12
The WORD is powerful
But the WORD of the Lord endures forever." And this is the WORD that was preached to you. 1 Peter 1:25
Sanctify them by the truth; your WORD is truth. For them I sanctify myself, that they too may be truly sanctified. John 17:17,19
Sanctity through the WORD is sanctity through Jesus
Ask yourself today, if Jesus is the Word, the Word of Life that came from the Father, how do you know He is in your heart?
In the beginning was the Word, and the Word was with God, and the Word was God. HE was with God in the beginning. John 1:1-2
Who was He?
The WORD became flesh and made his dwelling among us. We have seen his glory, the glory of the one and only SON, who came from the Father, full of grace and truth. John 1:14
HE was the WORD, the Son of God.
That which was from the beginning, which we have heard, which we have seen with our eyes, which we have looked at and our hands have touched—this we proclaim concerning the WORD of LIFE. The life appeared...We proclaim to you what we have seen and heard, so that you also may have fellowship with us. And our fellowship is with the Father and with his Son, Jesus Christ. 1 John 1:1-3
Jesus Christ is the WORD of LIFE
Don't you believe that I am in the Father, and that the Father is in me? The WORDS I say to you I do not speak on my own authority. Rather, it is the Father, living in me, who is doing his work. John 14:10
These are the WORDS of the Father
Jesus answered, "I am the Way and the Truth and the LIFE. No one comes to the Father except through me. John 14:6
The WORD is the Way, the WORD is the Truth, the WORD is Life.
This is the message we have heard from him and declare to you: God is Light; in him there is no darkness at all. If we claim to have fellowship with him and yet walk in the darkness, we lie and do not live out the truth. But if we walk in the Light, as he is in the Light, we have fellowship with one another, and the blood of Jesus, his Son, purifies us from all sin. John 1:5-7
The WORD is Light in the darkness
How can a young person stay on the path of Purity? By living according to Your WORD. Psalm 119:10
The WORD is Pure
I have hidden your WORD in my heart that I might not sin against you. Psalm 119:12
The WORD protects you
If we claim we have not sinned, we make him out to be a liar and his WORD is not in us. 1 John 1:10
Is the WORD in you?
For the WORD of God is alive and active. Sharper than any double-edged sword, it penetrates even to dividing soul and spirit, joints and marrow; it judges the thoughts and attitudes of the heart. Hebrews 4:12
The WORD is powerful
But the WORD of the Lord endures forever." And this is the WORD that was preached to you. 1 Peter 1:25
Sanctify them by the truth; your WORD is truth. For them I sanctify myself, that they too may be truly sanctified. John 17:17,19
Sanctity through the WORD is sanctity through Jesus
Ask yourself today, if Jesus is the Word, the Word of Life that came from the Father, how do you know He is in your heart?
Subscribe to:
Posts (Atom)