2017 Finale Video

Sunday, June 3, 2012

On the Edge

Steroids week is finally coming to an end for Lincoln again. Last night we took him to the Starlight parade in Portland where the CCA had the only sky bridge in the city reserved for the kids with cancer.

It was a successful event with only one minor meltdown when Lincoln had some of his friend Jack's fishy crackers, but then wanted to eat the rest of the bag. His appetite for salty foods can become an appetite for destruction when he doesn't get what he wants, when he wants it, even in the middle of the night. We have to keep telling ourselves that this is not his normal behavior and that the best thing to do is just submit to his wishes if even when it interrupts us at the most inconvenient times. Our nerves are on the edge at times when he cannot be satisfied for short periods of time, and without any possibility of patience it feels like we are bordering on neglect him.

Cancer has taken a lot from us in the last year, but we still have our son and we fight for him at all times everyday because we know he can overcome. Hopefully soon we can start taking him back to church since he was looking forward to moving up to teacher Lola's class when he turned 3 last October. I don't know what it is like to fight cancer with your child without God in your life, because even though we know the numbers are getting better with the way doctors are treating kids, there is nothing that will give us 100% hope than our faith in the promises that he will give us "a hope and a future."

Here is a music video that I came across that makes me realize that hope comes from having faith in our Savior Jesus Christ, even when there is not hope at all. Grab a box of tissues.

1 comment:

Bea said...

I have never been on the megadoses of steroids like he has, but even the ones I have to take for my asthma turn me into a salt addict. I can't get enough potato chips or anything salty. Chips and water, water and chips...it's awful.