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Tuesday, July 5, 2011

Going the Distance

Tonight feels like the night before graduation from high school. For a very long time, in some cases 4 years and in others, 4 days, we prepare to go out into the great unknown.

The excitement of completing the course and the fear of the unknown, while still knowing next to nothing when it comes to the real world, are stirring inside. We just took a crash course and now were off to finish this race called life.

There are many obstacles that dissolved before us from the time Lincoln was diagnosed until now, but there are a few more that have an opportunity to present serious challenges.

We have heard a lot about the steroid Dexamethasone that has some more serious side effects from constipation to extreme mood swings, and that could be for the next 6 months.

We may be leaving tomorrow but we will be back every Monday and Thursday for clinic.

There are still some unknown genetic issues we could discover that could complicate or even lower some risks.

The biggest thing is a very real change in lifestyle that could be 3-5 years until he is completely cured.

Cancer has been exposed to the medical field and is losing it's power, but it can still be sneaky and it still kills 1000s of children each year.

I refuse to believe medicine and doctors are the only chance of survival from life threatening diseases. God, family and friends who support the victim of cancer with prayer, communication and every day living needs are more significant than could be expected.

Thanks is not enough from our family to yours. With so many blessings We want to give it all back and then pay it forward to someone else in need.

1 comment:

Patty said...

Sending prayers to you and your precious family. I read about Lincoln on the Layla Grace Children's Cancer Research Foundation Blog. Please know you are not alone in this fight and that we are all praying and keeping you close to our hearts. God bless.